“The intersection of people, policies, and priorities in research ethics review for research involving Indigenous” (Keynote)

Monday, March 13, 12 p.m. – 2 p.m., CE 265 (Sydney Credit Union Room)

Title: The intersection of people, policies, and priorities in research ethics review for research involving Indigenous people.

Keynote: Julie Bull

Abstract: Indigenous people are mobilizing to take greater control and governance over the research being conducted with their people and on their lands as a natural extension of self-determination. Within this context, it is necessary for researchers and administrators to understand how to engage Indigenous people in the research process and how to meaningful build research relationships in a co-learning model with shared benefits. The TCPS-2 (2010) provides national context for the ethical conduct of research involving First Nations, Inuit, and Metis. This, coupled with many regional and local guidance documents in Canada provide a complex landscape for ethics oversight for research involving Indigenous people. Despite the growing amount of documentation about what to do in research involving Indigenous people, there is little description of how to do it. Based on a decade long partnership between

NunatuKavut, Newfoundland and Labrador Health Research Ethics Authority, and Memorial University of Newfoundland, this presentation will highlight wise practices in research administration for research involving Indigenous people. Through the lens of both academic and grassroots Indigenous initiatives that aim to understand the intersection of different knowledge bases and policies, and the movement to decolonize research by Indigenizing methods and ethics, this presentation will provide contextual and practical information for research administrators that can be applied in the role they play in this context.

Bio: Julie Bull is an award-wining researcher and educator of mixed Inuit descent and is a member of NunatuKavut, Labrador, with more than 15 years of experience in community-based research with Indigenous communities. Her academic background is interdisciplinary (Philosophy, Psychology, Health Policy Research, Bioethics) with a focus on research ethics and methods for research involving Indigenous People. Julie is a Research Methods Specialist at Canada’s largest Mental Health Hospital (the Centre for Addiction and Mental Health in Toronto) and she teaches in the Indigenous Studies Program at the University of Toronto and in the School of Public Health and Social Policy at the University of Victoria. Julie works with Indigenous communities, researchers, and administrators to implement wise practices in Indigenous research and is an invited lecturer and speaker at many events throughout Canada and around the world. Among Julie’s many awards and accolades are the CIHR Vanier Graduate Scholarship, the Scientific Director’s Award of Excellence from the CIHR-Institute of Aboriginal Peoples’ Health, the National Aboriginal Role Model Award from the National Aboriginal Health Organization, and the Jens Peder Hanson Memorial Fellowship Award. Julie and the team she works with in Labrador received the MUN President’s Award of Excellence for Community Engagement in 2015 for their work with NunatuKavut examining research ethics and governance in complex communtiies.  Julie is active in both academic and grassroots initiatives such as a committee member for education and outreach with the Panel on Responsible Conduct of Research and a member of the NunatuKavut Community Council Research Review Committee.  She is also the interim Chair of the Native Council of Prince Edward Island’s Research Advisory Committee (NRAC).

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